Doctors told a 14-year-old New Jersey girl who experienced at least six seizures and more than 100 hours of near-total paralysis that her diagnosis may be in her head. And in a sense, it was. According to her mother, Lili Manzo had seronegative autoimmune limbic encephalitis, an extremely rare disease characterised by frontal lobe swelling.
According to paediatric neurologist Dr. Jeffrey Kornitzer of the New Jersey Pediatric Neuroscience Institute, the cause of the rare case, which is “extremely underdiagnosed,” remains unknown. Malone is on the mend and optimistic despite the difficult path she’s traversing, nearly a year after her initial diagnosis. “I utilise it as a source of motivation,” Malone told NJ. “Therefore, if I’m having a bad day, I should consider where I came from. I employ it to assist me.”